Stories from Visitors

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Lost 3 year old twin son | California

It has taken me several weeks to pull myself together, to sit down and take a breath. I don’t imagine this will ever get easier or hurt any less. But I have to tell this story and hope that because of it, one less child will die from meningitis, meningococcemia, or any meningococcal disease. I have always thought this saying to be true, “An ounce of prevention is worth a pound of cure.” Therefore, on the one-month anniversary of Phoenix’s death, the time has come to tell his story. Phoenix is my beautiful, intelligent and amazing son. I want every parent to know that he was a precious child who was loved, cherished and cared for by his parents and his twin brother. In just a few days, I went from being a happy mother of two playful little boys to a grief-stricken mother trying to find meaning in such…  read more


Lost her 2 year old brother | Vermont

Losing your sibling is an experience that impacts your life forever. I know this because I live with it every day. On May 20,1997 my little brother Justin died from Bacterial Meningitis. I was 4 and he was 2. We were on our first family vacation to Atlanta, Georgia, to visit my aunt.I remember my brother getting sick and my parents bringing him to the doctor. When they got back, they told us he had a cold but he would be ok. Then I remember waking up in the night to the paramedics and police officer in my aunt’s house. They took Justin to the hospital and my parents left with him. I was so scared, that I ran and hid in my aunt’s room. In the morning my aunt took me to the hospital. I was admitted and checked for Meningitis. All I wanted to do was see my…  read more


Lost her 17 year old twin sister | Georgia

My name is Kaitlyn and my twin sister, Brittany, passed away from bacterial meningitis on April 20th, 2008. We were 17 and seniors in high school. Brittany came home from work April 19th and went to bed complaining about a headache. She woke up at midnight, throwing up and with a very high fever. My mom and step-dad took her to the hospital, and the doctors ran tests on her which all came back negative… the only test they didn’t do was the spinal tap for meningitis. About 6 a.m. on April 20th the hospital sent her home to rest. A couple hours later she woke back up, fell out of the bed, and pulled herself to the nearest trash can to throw up.. this time we knew something was not right!! She was throwing up, high fever, couldn’t feel her legs, and was not herself at all. The hospital…  read more


Lost her 3 year old son | California

My son was 3 years old. Christian woke up with a fever. It took me a couple hours to get him back to sleep after giving him a fever reliever and a cool bath. I woke up a couple hours later with him still burning up. I was very worried and called his doctor and got him to be seen at eleven that morning. I got him into to the doctor’s at eleven. The nurse that came in did not take his tempature, because she had left the thermometer in the other room. The doctor did his normal exam: looked in his ears, listened to his chest. He gave me some suppositories because Christian wasn’t holding anything down. His doctor told me that Christian would be better in a couple days, he told me my son just had a bug. I was more worried and questioned him but took him…  read more


Meningitis Survivor | Georgia

I had spinal meningitis when I was 8 years old. I’m now 21. Luckily I lost no limbs and came out just fine after my long week in Egleston Children’s Hospital. From what I remember, I was sick one day, starting off with headaches and stomach pain and coughing with some vomiting. My mom took me to the local hospital, and they said it was just the flu and I’d be fine, and that she was over worrying. Overnight it seemed the symptoms got worse, and that’s when my eyes became extremely sensitive; the smallest bit of light hurt and my legs became EXTREMELY sensitive. The lightest touch or breeze to barely scrape my leg would send the most excruciating pain up my back and all over my legs, as if somebody was literally stabbing a sword through the bottom of my feet into my back up to my head….  read more


Meningitis Survivor | Texas

I contracted meningococcal meningitis when I was only three days old. I was very lucky and received treatment within hours of contracting the disease. In 1946, penicillin was the only drug available to combat meningitis. Back then, the survival rate was one in seven, according to the doctors at St. Mary’s Infirmary in Galveston, Texas, where I was treated. It was not easy for me to live with the neurological after effects. It took me longer to master new skills and concepts. I discovered through the years that my way of learning was different than it was for others, but I could, and did, learn. I served 30 years with the military both reserve and active duty and received Letters of Commendations from Generals in the Air Force, and both the Navy Achievement Medal and Navy Commendation Medal. At age 57, I have proven that survivors of bacterial meningitis can…  read more


Lost her 2 year old son to meningococcal disease | Michigan

Our beautiful little Boy Christopher Todd was born healthy on 7/22/1995. He was our second and had a very loving big brother. Life was wonderful. We had everything anyone could ever hope for. A house and two awesome boys. Life was good. Then when he was two, our lives changed forever. It was his dad’s birthday, and we had plans for dinner, and the boys were going to Grandma’s house. Little Todd was fine all day. NO SYMPTOMS. Then he started to slow down and run a mild fever. We called off dinner thinking he had just a bug. After all he was two and my oldest was in school. I figured it was just something that would pass. Within an hour, his fever spiked to 105 and he started to have a seizure from the fever. We immediately rushed him to the nearest ER. The doctors did not seem…  read more


Meningitis Survivor | Georgia

I was 19 years old when I contracted Meningococcal Meningitis in August of 1996. I lived in Jasper, Georgia, at the time and was enjoying my summer with friends. We had been camping at a nearby river and had gone to town on Friday night to get something to eat and ride around. After going to dinner around 6pm, we decided to go to a friend’s house nearby. At about 7:30 I felt like my head was about to explode. Fifteen minutes later I had my friend stop the car so I could throw up. I recall thinking that I must have gotten a bad burger. We started back, and no more than 15 minutes later I had my friend pull over again. This time I could not make it back to the car. My friends took me home to my mom’s house. I told my mom that I must…  read more


Meningitis Survivor | California

Friday, April 9, I was working in my garage. Suddenly I felt drained of energy. I got super cold. I was shivering and felt like I wanted to throw up . I thought I had food poisoning for sure. I went to the bathroom and forced myself to vomit, which I did very violently. I could not get warm. At 2:00 AM I woke up gasping for air. It felt as if a five hundred pound gorilla was sitting on my chest. I knew something was seriously wrong; however I was not able to put my shoes on. I asked my wife to help me, and then she drove me to the emergency room. After tests for swine flu and pneumonia were negative, I was placed in I.C.U. The doctors did not know what was wrong with me. My breathing became weak and I was placed on a breathing machine….  read more


Lost her 19 year old brother to meningitis | Minnesota

About a month ago my 19 year old brother was hit with meningitis. No one expected his sudden death. He’d been having a bad migraine and flu-like symptoms that morning. His girlfriend had told him to go in to the doctor, but he refused, because he is so stubborn. When she came home that evening, she found my young brother had died. Taylor had died of meningitis in his own home, without ever even knowing that he had it. Taylor had had a life threatening accident 2 years previously which left him without his spleen. This is something that is needed in the process to fight things off, and he didn’t have it. Taylor was taken at way too young of an age. Meningitis is something that everyone needs to vaccinated for, because it can hit you without even expecting it!

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