NMA Advocates in New York

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Carol-Tufano

Carol Tufano

New York

M.O.M. of Heather (survived at age 18 years)

Heather Tufano

Carol Tufano’s daughter, Heather, was a freshman in college when she contracted meningococcal disease. In October 2005, Heather called her mother to tell her she had been vomiting and felt weak. Concerned, her father, Jerry, went to check on her. When he arrived, he found that Heather could not walk and was developing a purplish rash. Jerry called Carol who as a nurse recognized the symptoms of the potentially fatal bacterial infection. She told her husband to rush Heather to a hospital. By the time they arrived, Heather’s legs had begun to turn black and her kidneys began to fail, causing septic shock. Doctors had to amputate Heather’s right leg below the knee and two of her fingers in order to save her life.

“I want all parents to be aware of the symptoms of meningococcal disease and prevention methods so they can make an informed decision on how to best protect their children,” said Carol.

Heather-Tufano

Heather Tufano

New York

T.E.A.M. member (survived at age 18 years)

Heather Tufano was an 18 year old freshman attending college in New York City when she contracted Meningococcemia. Her symptoms began at 11 o’clock at night with fever, chills and pain in her joints, so extreme that she could not walk. By early the next morning a black and blue rash spread quickly all over her legs. She was immediately brought to the intensive care unit at a local hospital to find out she had a 5% chance of living that night.

Heather was in the hospital for 3 months and underwent roughly 8 surgeries, including the amputation of her right foot and 2 fingers. Once she left the hospital, Heather had to learn how to walk again by going to physical therapy for several months. Since she left the hospital in January of 2005, Heather returned to school and has now graduated college. She joined NMA to educate and create awareness about the signs and symptoms of Meningococcal disease.

Patti-Wukovits

Patti Wukovits

New York

M.O.M. of Kimberly (age 17 years)

Kim Coffey

One afternoon in 2012, Patti’s daughter Kimberly, a high school senior, alerted Patti that she was feeling feverish and achy. Kim’s doctor thought she had the flu and asked them to come in the next day. By morning, Kim had a rash on her ankle. She was rushed from the doctor to the ER, but her organs were already failing. Nine days later, Patti and her husband John had to say goodbye. Kim passed away just one week before her senior prom and graduation.

Kim was vaccinated. While vaccines available at the time covered most strains of the disease, they did not cover serogroup B meningococcal disease, which is what Kim had. Patti is grateful that there is now a vaccine available to protect against serogroup B and hopes it will be used broadly. She works with NMA to educate others about meningitis symptoms and prevention.

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